2023-08-10
Professor Liu Li: The diagnosis and treatment of rare diseases require joint efforts from multiple parties to eliminate barriers
"When we were kids reading 'The Little Match Girl', how we wished that someone could help her and let her have some food and warmth on Christmas Eve. Rare disease patients are just like the little match girl. Now that we have grown up and have the ability, we should help them and bring them warmth," Professor Liu said emotionally.
2023-08-10
Professor Qiu Wei: Early diagnosis and treatment can improve the prognosis of patients with autoimmune rare diseases, and rare diseases need to "be seen"
Question 1: What are the most common neuroimmune rare diseases that you encounter in your clinical w
2023-08-10
Professor Yaping Tang: Advancing Rare Disease Research Through Collaboration and Innovation
the "A Rare Journey Together" initiative has invited Professor Yaping Tang, Executive Director of the Pediatric Research Institute at Guangzhou Women and Children's Medical Center, to impart his extensive knowledge and insights on rare disease research. His expertise provides invaluable guidance for both patients and healthcare professionals.
2023-08-03
Han Lanqing, Executive Secretary General of the Alliance: Establishment of the alliance promotes the clinical transformation of rare disease drugs and empowers the diagnosis and treatment of rare diseases
Han Lanqing introduced that the key to treating rare diseases is to find the pathogenic gene.